Whirlwinds and living

 

 

Wow, what a busy few months. Sorry to have neglected this page, but I’m finally back! I have been so so busy, and really should have made more time. Saying that, any spare time I had was spent trying to sleep, catch up or just, well, live!

If I am honest, I am uncertain if I will continue to blog. I can’t say I missed it, which makes me wonder if it really is for me. I feel so exposed when sharing my thoughts and feelings, along with experiences. Yet is this selfish? If my experiences can help encourage someone else to leap into a world of believing and achieving, then surely I should try to help? I will surely figure this out whilst my crazy life begins to settle, ever so very slightly.

So, where have I been? Nowhere! I have been submerged in a life of exams, essays, placements, working, studying, sleeping, working, dreaming and how can I forget trying to manage this arse of a long term condition DIABETES. Like seriously if life wasn’t crazy enough, diabetes nearly tipped me over the edge. There have been times when even saying or hearing that word made my ears bleed, my throat dry up and my face turn bright red. Spoiler alert*no marvel comic action hero scene actually happens. I DO NOT turn into the hulk. Although, sometimes I felt like I would literally self-combust at any given moment, especially while writing my dissertation. I cannot even describe what I was going through. Yet I manged to get through it and somehow achieve a very high first for my dissertation! Hope you’re giving me an air high five now?! If not do it! YEAH…. It felt good right?

Actually, I have been somewhere. Que a slightly, ever so proud, big headed Kelly moment…..I cycled again. That’s right, amidst all of the crazy hectic life of mine, I somehow managed to fit in a cheeky relaxing bike ride in France again. OK, relaxing isn’t quite the word that describes what actually happened, 65miles in one day of tremendous mountains, blazing sunshine and a near death experience….that should set the scene for you! (Yes I am slightly (extremely) exaggerating).

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This month I would have been managing my diabetes for two years with my side kick Penny, aka my portable pancreas aka my insulin pump. What a whirlwind it has been, time has literally flown! We have a love hate relationship, and at times I feel we just hate each other more than we really should. Yet, when I actually think about, it was never really going to be easy. I was fairly new to diabetes when I started to use a pump, a mere one year into studying at university. A new environment with new stresses which would continue to change throughout my studies with increasing placement commitment, long hours, pressure and exams. I know I like a challenge, but jeez this has to be the biggest challenge ever! And just when I think I understand how to manage blood glucose levels when working, eating, drinking, sleeping, exercising, socialising, it all changes and I have to start again. No matter how much I think I know, I always feel I know very little. This is probably the most frustrating thing about type 1, for me. I long for some regularity, instead of having to constantly learn new techniques and adapt my life, medication and mind-set just to stay well and ultimately alive. It’s this frustration that makes it hard for me to manage. I like to be in control, as I’m sure everyone else does. When I can’t even manage my own health and well-being, no matter how hard I try, the frustration kicks in. I then don’t want to put any more of my time and effort into diabetes, if everything I am doing isn’t working. For me, I need to focus on what is important at the time, and if diabetes tries to get in the way I turn a little crazy. I can totally blame hyperglycaemia for this though….right?

I have changed so much over the last few years. Somehow I have grown in confidence. I have been able share my fears and concerns which in turn has helped me become more confident. I have my amazing friends and health care specialists to thank for this. Without them I really don’t know if I would be half the person I am today.

There are the days where others tell me how much they admire me, and how inspirational I am. As much as it’s very lovely to hear I get a little overwhelmed with it. I don’t really understand. How can I be inspirational? I wouldn’t tell someone else how inspiring they are for riding their bike (ok, we did cycle a looonnngg way! Check it out – Ouistreham to Bayeux), or for swimming in the sea. But having diabetes, everything I do seems to be an achievement. IMG_20170618_141247_031I don’t want to sound ungrateful, because I’m really not. I love how kind everyone is, but inspirational….come on. Inspirational is the likes of Roddy Riddle, walking over 300miles in freezing conditions, putting his own well-being at risk. Crazy yes, but inspirational! Inspirational is my close family friend, who is trying to live each day and watch her young children grow whilst arse face Cancer is trying to kill her each day. That’s inspiration right there for you!

Right now I am learning to enjoy living again.  Remembering who Kelly really is and brining fun and laughter back into my life.  With everyday life continuing to grind me down, I’m learning to push back up.  To work through the difficult times and continue to accept the help I so desperately need.  Because life really is crazy and can change within a fraction of a second…..

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So whilst I ponder over blogging and eating freshly baked banana loaf, I will continue to remain upbeat, help others and plan the next adventure including coastal steering, and most importantly a new diabetes mission! To be continued………??

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Ouistreham to Bayeux

Following our amazing charity bike ride, London to Paris, in September 2016, the ladies and I wanted to continue our cycling adventures. Being out on the bike, cycling through picturesque villages bought a smile to my face and for once I felt I could actually do something good for my mind, body and soul (cheesy I know!). So of course, I wanted to help arrange another bike ride. Originally we looked at cycling in Holland, yet with it being a pain in the arse getting out of the UK with our bikes, France was the best option. Who wouldn’t want to cycle in France anyway, they have fantastic cycle routes and the best croissants!

Since the charity ride last year I haven’t really cycled much. The pressures of uni really got to me, and I had no time or energy for anything other than studying and writing my dissertation. Yet I needed to start getting out on the bike again, it’s not as simple as getting used to being back on the saddle I had more important things to learn AGAIN. In case you didn’t already know, my blog name gives it away, I had to remember how to manage those pesky blood sugars before, during and after cycling. Let the hard work commence!

In between studying, exams, dissertation writing, going to uni, going to work and trying to live I managed to fit in a few rides with some of the girls. To begin with I felt like a newbie on the saddle, yet after a few long distances rides I remembered how much fun it was to be back on the roads with lots of laughter. With time I soon built up my confidence and began to master managing my blood sugars just like I had before.

‘I can do this, right?’ I mean, I cycled over 200 miles to Paris last year, I can totally do this. But the anxiety began to creep in. The what if’s. What if I can’t cycle far? What if I hold everyone one up? What if I have a hypo, like a bad one and need help? What if I need the others to help me with my diabetes? I know I did not need to worry, I was with some amazingly supportive friends, but I don’t want to hold others back and ruin their experience.

Two weeks or so before our planned trip my blood sugars began to start dropping, quite suddenly. Many of which I had no warning. Maybe the change in weather caused this001? I made multiple insulin adjustments yet these did not help at all. At times I reduced my basal by 60-80%, and reduce my bolus yet still have hypos. I couldn’t seem to stop the hypos, no matter what I tried they just kept attacking me. Those who have hypos will understand how frustrating and tiring low blood sugars can be, and quite frankly it can really get you down (literally!) The day before we were due to head to France I woke tired from multiple hypos and felt there was no way I could cycle right now. Not only was I exhausted, I knew cycling would make my blood sugars even lower. Given the amount of hypos I had already faced, I started to worry that cycling may actually contribute to me needing emergency treatment for a low blood glucose. This scared me so much. I didn’t want this to happen, especially not in another country, potentially in the middle of nowhere. I knew I would be with the best people, a group of very knowledgeable and experienced diabetes specialist who could look after me if required, but I really didn’t want them to have to do this. This is meant to be a relaxing cycle break for us all. It would be selfish of me to even consider going. I had made my mind up. It was safer for me to stay at home. Safe in my bubble. If I didn’t cycle I wouldn’t increase my chances of passing out. A quick message to the crew and a sigh of relief. Yet the response I got bought a tear to my eye:

“We started this together, we will finish together”

I got the impression that not going wasn’t really an option! I needed to ‘man up’ and take each moment of the ride as it comes.

Saturday 3rd June 2016

6.15am: After a fab night dancing away and 3 hours sleep Lauren messaged me to say she was on her way! I had only just got out of the shower…..I needed to be ready and outside within ten minutes. Challenge accepted!

Once parked, Lauren and I cycled 3 miles to Portsmouth Ferry, where the others were waiting for us. Although all were tired, we were excited and smiling as usual. Boarding the ferry bought back memories of the charity ride, I knew I made the right choice to come. I couldn’t let diabetes ruin the fun!023

The ferry journey was fun, I wouldn’t expect it to be anything other than laughter throughout! Croissants, costume change, balloon models, quiz by Rusty Cutter, glitter tattoos and armed with our new mascot Pierre, we were ready to take to the roads! We also met some veterans, and some lovely chaps who knew friends of ours, and were heading out for the D-Day event in Bayeux.

 

We arrived in Ouistreham at 3pm to discover a fabulous cycle route to our next destination. Apparently this route was here last year too. Instead we choose to cycle through campsites, onto the motorway and goodness knows where. Who would have known it really didn’t need to be so dramatic, if only we had found this route! The sun was beaming down, we were on our way and on schedule to arrive at our035 hotel by 7.30pm. At one point our route took us off road, it felt like miles through the trees and bumpy gravel. No problem, I had my new snake skin tyres, I was NOT going to get a puncture! With many photo stops, toilet breaks and hypos along the way we finally reached our destination an hour after we had planned. Did you actually just say you can’t find the key to our room! No worries, we don’t mind waiting a few minutes, a few minutes more…..like seriously how long!

Today’s ride was fuelled by 1 large bag of jelly babies, a handful of gluco-tabs, 2 sports gels & -80% basal insulin.

After a lovely/random meal, and toasting Sarah’s birthday, it was time to rest our tired body’s. 040

Due to all the low blood sugars, the ladies I shared a room with were a little worried and wanted me to go through my dexcom alarms, have fast acting glucose near me and maybe some reassurance? “It’s ok, I do this every day.” I put the dex alarm on vibrate, so it would only alarm if 3.1 or below, I didn’t want to wake everyone, and explained to Sarah (who I was sharing a rather large comfy bed with) that I keep quite still so no need to worry about me trying to snuggle up with her. At one point in the night I woke really cold, but didn’t want to get up to find the blanket. I am sure Amanda had the blanket, and I didn’t want to wake everyone. Little did I know I already had, and boy did they let me know in the morning! Turns out the dex vibrated to alert a high blood glucose and rising. It did NOT alarm Amanda! Therefore I slept through this. I was also grinding my teeth, talking in my sleep ‘pass the jam Sarah’, and also snuggled into Sarah. How freaking embarrassing! I felt awful, they had not slept well because of me. Well apart from Paula, who was oblivious to it all. Maybe if you passed me the jam Sarah, I would have been ok?!?

Sunday 4th June 2017

After breakfast, an outfit change and photo shoot, we were ready to set off to our next destination 40-50miles to Bayeux. I felt confident that my blood glucose would remain slightly higher today due to the overnight spike, and hoped to reduce or even avoid hypos.046.jpg

Many photo stops, we had all day to relax and enjoy this picturesque, extremely uphill ride. Seriously how many hills! After luckily finding an open shop, we secured our baguettes onto the bikes and set off to find somewhere to stop for lunch. The hills had put us a little behind schedule, but not to worry we were halfway there and it was a lovely sunny day. Maybe we will aim to arrive in Bayeux between 4-5pm. Still giving us plenty of time to get to the beach and enjoy the D-Day fireworks and celebrations.

 

STOP! Did that sign actually just say 36km?? Amanda gave me a little smile and told me to ignore the signs, it was the route number. For the next hour Amanda continually told me to stop asking how many miles, ignore the signs and keep pedalling. I knew something wasn’t right, those signs definitely meant km, not the route number. Throughout we all managed to laugh about the distance we had to still cycle. A quick call to Valerie, our accommodation host, advising we will be there for 7pm. A stop to ask a local if we could fill our bottles with water and friendly tanks beeping as they passed us heading toward Bayeux, I felt positive we would soon arrive. Yet it soon became clear we would not get to Bayeux until 8pm. Why oh why did we have 17miles left to cycle, yet now have even further to go?!? I was starting to flake, like everyone, and began feeling really ‘cranky.’ I couldn’t see the funny side anymore and just wanted to give up. Literally who makes hills this steep which go on forever?!? I was so hot and could feel a sweat coming over me. Oh, hello hypo! I had tried so hard to avoid this all day by eating cereal bars and having jelly babies and gels before getting to a blood glucose of 5. How on earth did this just happen. I felt angry, my legs felt like lead but I didn’t want to stop, we were running late already. After eating at least 12 jelly babies my BG began to rise, slipping out of the 2’s and into the 3’s. I nearly even made it to 4. I still felt cranky and everything felt even more difficult, but I was determined to keep going. Just keep cycling, just keep cycling……080

I knew I was struggling as the distance between the group and I began to widen. I felt really hot and had the awful hypo sweat come over me. No, please not again. I was back in the low 3’s with the arrow heading down. I got the impression that everyone started to realise something was wrong, and I found that someone would hang back with me. I reassured when I could, saying I was ok and that my BG will soon rise, but I didn’t want to talk anymore. The bike felt heavy, I felt like my arms were struggling to hold me up. ‘I’m ok, just five more minutes. I do feel woozy though, I feel odd.’ I started to struggle to get the words out, it was easier to stay quiet. Keep your head down and keep pedalling, we are nearly there! Amanda was talking to me, I haven’t a clue what she said, but with a dex reading of 2.2 and a downward arrow I heard her shout STOP to everyone. It was time to take a quick break, treat the low and get moving. Yet I couldn’t get off my bike. If I just stand here for a while I will be ok. I need this gel but I cant seem to swallow. I know what I need to do, but I cant seem to do it. I need to sit on the floor. No one look at me, I think I’m going to fall. I can’t tell you this though as I can’t seem to say what I want to say. Just keep your head down, sit down Kels, it will pass. No thank you, I don’t want bread. I wouldn’t be able to chew it. Everything looks a bit blurry, I feel awful. Please don’t pass out. For someone who has never fainted I was petrified of this happening, and even more so of embarrassing myself. I remember trying to think where the glucagon injection was, but literally couldn’t think. I wanted to tell the others to get it, but I couldn’t find the words, so I just sat quietly politely saying ‘no thank you’ when food was offered. What felt like forever trying to suck out the last of the sports gel, with the sound of me swallowing exaggerated in my head along with my heartbeat, I eventually started to feel more awake. I could speak, I’m ready, lets go!

That has to be the worst hypo I have experienced. Although I felt scared, I felt safe knowing that my friends would look after me, if only I had told them where the glucagon was though (lesson learned!).

We eventually arrived at our accommodation at 8.45pm. What a lovely place too.

Quick shower and outfit change, we headed for a nice meal and a few beers. What a looooonnnggggg day!!

Monday 5th June 2017

With no dex alarms, everyone slept really well. As soon as Amanda stepped out of bed the laughter started! Check out the tan lines!

After a quick trip to Bayeux tapestry, photo stops and croissants, it was time to get back on the bike and head to the ferry.

Cycling through some lovely Poppy fields, we bumped into a group of men (some very fine looking men). Some on a tandem bike, pink tassles, pink baskets and heading for the same ferry. I’m going with them! But oh no, some people, mention no names, wanted to be sensible and go the bike route. Amanda and I tried hard to persuade them, but they went into parent mode and there was no way we were going to win this one. OK, it was Sarah & Paula! Sorry, but this is something I will124 always remind them of, you will find out why later!

 

We found somewhere on the beach to have lunch and I was determined to make use of the bikini I bought along. After some persuasion, Amanda, Maggie & Sarah also agreed to make a quick dash into the sea (although Sarah decided to stay in her cycle gear….next time ay!) For the first time since I have had Penny the pump, I felt ready to take her in the water. Yet all the DSN’s with me suggested not to. I was starting to see a change in them, little worries of how I used to be. Maybe being with me and pretty much living diabetes with me, they had started to take on the worries I had/have? I decided against taking Penny for a dip, just in case!

With 45mins to get to the ferry, we had plenty of time to cycle at a nice pace. Hang on a minute, this ride reminds me of somewhere we have been before. London! Yep, stop at every traffic light. It was getting really cloudy and dark and we were running out of time. Does anyone else feel that we thrive on pressure?!? As we cycled onto the ferry the rain started. Luck had been on our side throughout this weekend. All we needed to do now was find a nice spot to sit and relax on our way home.

So we bumped into the group of guys again, who showed us where we could sit and relax on recliners. We never saw these before, because we danced the night away! After a game of hide and seek, putting on face cards and staring at other passengers – Lauren was very good at this, we giggled all the way home. We also established that the guys were footballers, 2 of which played for saints – one being the goalie. Note to Sarah & Paula – trust me next time when I say we are joining a group of men

We arrived to gale force winds, rain and experienced nearly being blown off of the boat. I always wanted to rein act ET, I should have just le164.JPGt the wind take me up, up and up!

 

 

 

 

 

 

I can safely say we are already planning our next cycle trip away. I have a feeling this will be an ongoing journey. Literally love each and everyone of my cycling friends and can’t wait for our next adventure!

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It’s a cycle 2 days in a row kinda weekend 3rd & 4th September 2016

Wow what a weekend. Just sat here now, my brain completely wired, full on awake. Yet earlier today I looked like I had not slept for days. Completely and utterly exhausted.

So who thinks this cycling malarkey is easy?!? Well, I shall let you into a little secret….come closer, I don’t want anyone else to hear…. “it’s not.” Didn’t hear me? “It’s not!!” Yet it is most certainly the best thing I have ever committed to.

So as you all know, yes I will bleat on again, having type 1 diabetes makes exercise sooooooo much harder. Just when I think I have figured out how to keep my blood glucose levels (BG) fairly stable before, during and after a bike ride, my body decides to chuck in a curve ball. This has not stopped me though. Actually it has made me a more confident and determined little soul. I blaaadddyyy love cycling!

O.K back to this weekend. Two days cycling quite a large distance for me.

Saturday consisted of crazy Donkey’s and horses chasing me. I soon realised they were after my banana and not actually trying to eat me (even though Amanda was sure we were Donkey dessert!)

Of course we reached the crazy beast of a hill. Like literally this is a struggle to walk up, I stomp up on my tippy toes whilst Amanda just keeps cycling. That lady is totally determined. I just look at this 25% incline and get off immediately. Total respect to you Mrs Pamplemousse. Although you really do need to work on staying on your bike and quit toppling over, you really will damage those parts you keep telling me about.

Then there was the near slide under the lorries wheel experience. No exaggeration! I have never been so scared in my life, well not that I remember. Just as we were enjoying the downhill country road, a few blind bends and ‘Mr I have all this Hay on my truck so will take up your side of the road without slowing down,’ decides to just appear. Like seriously calm the freak down lad. What’s the rush? Jeeeeeeezzzzzzzz. In a blink of a moment BRAKES, stay still, stop wobbling, throw yourself into the gravel and bushes, chuck your leg down and lean to the side… AVOID THOSE WHEELS. Phew, we made it. I honestly do not know how I managed to stay on my bike, same can be said for Lauren with poor Amanda watching in horror. Those few seconds really shook me, more than I thought as the following day going downhill or around sharp bends I was hyper aware of everything and super cautious.

44miles later, the furthest we had gone. Amazing ladies! Totally shattered the rest of the day though.

 

Sunday.

I DO NOT WANT TO GET UP. Snooze alarm…..grrrrrr…get up! You HAVE to do this.

As soon as we take off I remember I’m with hills Sarah & hills Kev. Oh man, Sunday should be a duvet day. The saddle is causing some discomfort today, my legs are burning but this soon eases. I CAN do this! Who am I kidding, here comes a hill, and another, and another. It’s up, up and up we go. Literally just up! Totally the worst hill ever. FACT! I hate this route, I hate hills, I hate everything. My legs hurt badly, they feel really heavy. I can’t do this, I’m not doing this, I need to get off. It hurts to walk. Just get back on Kelly, sort it out! Oh no I’m going to be sick. oh no I have to stop. Please don’t be sick. One of my new warning signs of my BG dropping really quickly, nausea. Like the no time to even think nausea, it’s just going to happen. OK, you’ve got this. Test bg just to check and have a few sweeties. NO WAY. I’m hypo. No wonder my legs feel really heavy and I hate everything. Stop thinking and start eating. This nausea though. Down the juice, down the juice. Keep going, all will be fine in a few minutes. Just keep cycling, ignore the blurred vision, the mammoth sweat. DO NOT BE SICK. Phew no vomit, and finally at the top of this ridiculous hill ever.

OMG. Literally how many more hills today. Look at the sunflowers. I’m back in my happy place. I love cycling. I love this route. I love everyone. I CAN do this.

Arrrggghhhhh seriously enough of the hills. This is feeling ridiculously hard. I’m sure my tyres are even screaming at me. Wait, they are. I have a puncture, my tyre is flat. A lesson in removing tyres, changing inner tube. Team work, thanks team! Let’s go…..REALLY do we need any more hills. Hang on is that a bike, that’s a head…..there’s a guy laying in the bushes! Whoah calm down fella, no time for hide and seek on these bends. Luckily he had a soft landing and all was well. A few seconds earlier would have been a different story for a few of us approaching his path!

Lets go. I’m feeling tired. I feel angry. I’ve had enough. I want to get home. I want to get off. I want to stop. CAN WE JUST GET HOME. How many more hills. I feel sick….oh no here we go again. Jelly babies are your friend, keep going. And breathe. I’m happy again. Bloody hypos!

I have just cycled two days in a row! Go me. Can I get a whoop whoop

A whole lotta learning, training and perseverance

As much as I would love to include every detail of changes I made to my eating and insulin regime, you can breathe a sigh of relief as I wont bore you with that.  It’s been a massive whirlwind from the very start and I seriously cannot even remember all of the changes I made and when.  What I do know though, is with careful planning and getting to learn how exercise impacts on your own diabetes, BG levels can be managed very effectively.  I’m not saying it’s easy, far from it.  What I am saying is stick with it.  You CAN achieve anything you want to.  Nothing is impossible.  What I have achieved is proof that anything is possible!

“You is kind, you is smart, you is important.”

So, I knew I had to practice riding my bike. Getting used to a road bike would be hard. Firstly I was scared of cycling on roads.  There are far too many cars.  On reflection though, it’s the blooming pedestrians you need to look out for! Apparently it’s ok to just stroll in front of me as I am cycling 20mph downhill towards you and your buggy. Grrrrr.  Lucky for them, and for me, I have the reflexes of a cat. A ninja cat actually! A cycling ninja cat.

Enough of the crazy cat stuff. Back to training.

Being on a road bike felt so much different to my teenage mountain bikes. I had to balance on these teeny wheels. I don’t feel safe! Curly handlebars too, aka drop down. So much to learn about this bike. Why so many gears?!?  I’ve now learned that gears are my best friend when hitting the road and those blooming hills!!  However the bike was the least of my worries, although I made out many of times it was the only thing I was worried about. I lied.  The big D was my real concern.

My insulin pump team had arranged an exercise with diabetes workshop which I signed up to.  I was really excited to be joining and knew I would learn a lot.  It was so important for me to attend, however I now wonder if it was the right time?  I had been feeling really down and frustrated about my diabetes and from what I can remember had also been unwell.  Team this with exam and essay stress, managing my diabetes had moved down my list of priorities. Yet I knew this was extremely important and I had to really focus on making safe and appropriate changes to my insulin ratios along with the amount of carbohydrate I needed to consume. I knew it would be hard, I really did, but sitting in the first session it dawned on me how hard it could be.

01/02/16 Exercise & pump workshop

The day had finally arrived.  I was really excited to start learning how to manage my diabetes during exercise.  Although I was quite nervous.  I did not know my dietitian, Penny, that well and hadn’t a clue who I would meet on the day.  I knew it was a small group and believed it would be people with similar exercise interests.  I knew how important it was for me to start learning what I needed to eat, when I needed to eat, what I needed to reduce insulin wise along with the timings.  I knew how crucial it would be to ensure I kept within safe blood glucose (BG) levels.  I knew the importance of this but I couldn’t cope with all the information.  It was just too much to absorb.  All I could focus on was the amount of carbohydrate I needed to consume prior, during and after exercise. Then there was the BG testing through the night if I exercised after a certain time, and of course eat some more.  Eat, eat & eat. That’s all I heard.  I’m certain the session had more to it, but all I could focus on was the fact I would be coming back from this bike ride at least two stone heavier, maybe even double the size I started with.  Yes, I know this could not happen in a few days, but it’s how I felt.

exercise bg

I can’t do this.  I can’t eat this much.  If I need to keep testing in the night how will I sleep? This is ridiculous.  I’m never going to manage this. I can’t do this.  I’m NOT doing this. Will people stop talking about Golf! Why is everyone playing Golf?

I’m cycling to Paris.

No. No I’m not!

I can’t be here, I need to leave.  Oh no, don’t cry. You never cry, well not in front of others.  DO. NOT. CRY.  I can’t breathe. Get out now.

Cue the fight or flight response. “Sorry I have to leave, I thought the session finished at 4pm?” A little lie never hurt anyone right?

Through teary eyes I drove home.  I could not see properly, could not breathe properly.  I was a full on blubbering mess.  It was at this point I really began to fear this crazy challenge.  It’s just too much for me right now.  Irrational Kelly arose and I began to wonder how to tell everyone I would not be coming. I didn’t want encouraging messages. I just wanted to say, sorry but count me out of this.

A call from my DSN, June, within an hour of me leaving, (turns out I don’t hide my emotions too well even when I’m not talking). I had managed to discuss my worries and arrange a 1:1 with my Penny.

Here is the link to a small blog I wrote at the time of this minor blip.

Taking some time

It all seems a bit of a blur now, but as you have already seen I didn’t change my mind, back out of it.  Thank goodness I didn’t!

My first bike ride, the very first time I took my pearly white bike out, we cycled 27miles! I had been out the night before so had very little sleep, was ever so slightly (OK quite) hung over.  Poor Lauren and I had not even cycled before (only short rides). Yet we managed it.  We certainly showed we are tough cookies.  I must admit though it hurt to sit down for a few days, even walking was a challenge! If we could manage this I knew we could do it.

I just needed to learn how to manage my BG.

 

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Our first group ride 01/04/16 – a somewhat hung over & tired Kelly

 

 

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Pearly white handle bars

 

Learning how to manage my BG took a lot of trial and error, perseverance and determination.  I had to remain focused and committed throughout and ensure that I engaged with June & Penny as much as possible (sorry, I know I took up so much time!)

Many a hypo’s were had, which at times felt very deflating.  Knowing I had tried so hard to avoid them.  Then there were the hypo’s that appeared 12hrs/48hrs/72hrs post exercise. To start with I thought, yay you’ve nailed this, then the crazy hypo would appear 72hrs post bike ride.  These hypo’s were often ones that happened quickly, no symptoms until I just felt a little uneasy and nauseous. Test – 2.1. WHAT!

Then there was the overwhelming feeling of nausea. During a bike ride with Amanda I thought I was going to be sick, even thought ‘I don’t actually have time to stop.’

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This isn’t a graph from cycling, unless I sleep cycle?!?

Through the use of a Libre I soon established that this was a symptom of rapidly dropping BG levels.  This happened to me on a few occasions, mainly when cycling uphill.  One of the group training rides we cycled up this mammoth hill. Like literally, it went on forever.  Honestly!  I actually thought I was cycling to the clouds until the feeling of nausea appeared. BAM! ‘Stop Kelly, Stop. Where are the bushes. Do not vom on yourself.’  I didn’t want Maggie to see me being sick so told her to go on.  I knew I wouldn’t be hypo as I have always caught the drop.  But not this time. 3.5 and dropping. Thank goodness Maggie stayed back with me. Slightly embarrassing but Maggie reassured me that we are doing this as a group and will stop as a group.

 

 

Looking back, all these lovely comments really helped me and also showed me the type of person it takes to not only be a great DSN but a truly kind and caring friend.

 

With all the challenges faced I still managed to persevere and started to learn what I needed to eat and how to adjust insulin to avoid major impacts on my BG. Wearing a Libre at times really helped me see patterns, the impact exercise had during and after and establish how many jelly babies were needed to keep me going during long distance rides. This also helped my DSN & dietitian to suggest changes in food consumption and insulin levels. As a team I must say I was starting to feel safe and ready to do this.

I met with Penny many of times. Each meeting Penny would write everything down for me including how much carbohydrate to have before, during and after a planned bike ride. How much protein to have to aid muscle repair. What times to eat. How much to reduce my insulin by. These little notes helped as I could look back and remind myself what to do. All of a sudden it didn’t seem so over whelming. I finally started to absorb everything Penny was telling me. I had this. I can do this. I just needed to remember to eat more! Thanks to Amanda, aka Bruce, I was alwayimg_20160917_161847s prompted to eat cereal bars during our bike rides even if I was reluctant to do so.

A few weeks before setting off to Paris I went for a bike ride with some of the group. My BG20160903_111934.jpg remained stable throughout. I had nailed it! Yet by the time I had driven home my BG had spiked and was on its way up. This is something I had never experienced before. My BG had always dropped low. What do I do?? Again this was a different challenge and with my new confident exercise and diabetes management I found a way to start working with the high BG.

 

Within 6 months I had managed 20 long distance bike rides and approx. 10 short distance ones to and from work. 20 really isn’t that much but it turns out it was enough to get me from London to Paris!

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Where it all began – 07/11/2015

I remember heading back from the Diabetes Quality In care awards in October 2015 and discussing with Laura how I would like to do a charity bike ride. Laura suggested we should meet up, she only lives two minutes away from me, and go out on our bikes. My response “I don’t actually have a bike.” There goes that idea!

But I still wanted to do a charity bike ride, it would be a challenge.  I do love a challenge! I sent a little email out, not really expecting much interest.  What harm would it do asking some local diabetes health care professionals?  The likelihood is that most will say no, some will agree but actually not commit and therefore within a year I would still be sat pondering what to do

HOW. WRONG. I. WAS!!

Email sent 07/11/2015 – “I am arranging a charity bike ride next year, hopefully London to Paris (or something similar). This will be self-organised……Would anyone in your team be up for the challenge?!? ….”

After a few emails, a group of us who were keen to take part met on 7/12/15 in a local pub to go through the plan.  I must admit I was unsure if they really wanted to do this and doubted how dedicated they really were.  I also didn’t know some of them. Those I did know, I didn’t know that well (poor grammar, but c’mon I’ve just cycled to Paris!)

Before I knew it Christmas had passed and it was time to book the ferry to Dieppe. Cabins were being booked quickly and I was worried we would not have anywhere to sleep apart from the floor, maybe out on deck? The thought of sleeping out on deck though…..nope STOP thinking! There were approx. 11 of us who had agreed to take part, so I envisaged 6-8 of us booking onto the ferry. Wrong again! After a very panicky morning, I spoke with a lovely lady who managed to release a further fifteen foot passenger/bike spaces and the panic was over.  Wow, 14 of us booked onto the ferry!

Is this actually happening, for real?? I have to go through with this now, I’ve paid for my ferry journey from Newhaven to Dieppe.

It seems so easy. London to Paris here we come!

Yet the reality of it all began to dawn on me.  The whole point of this charity event is to CYCLE to Paris. I didn’t even own a bike. *Poor student alert!* I couldn’t even afford a decent bike.  Luckily for me I received a rather large refund by a utility company which meant I could buy a half decent bike. Yay!  Let the bike shopping commence. So many to choose from.  All the pretty ones are out of my price range or not suitable for what I needed.  Luckily Kev provided much advice and help and steered me away from the pretty, non practical bikes.

Why can’t I have these Kev, why?!?

 

Finally in March 2015 I became the owner of this beaut.

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Practical and light.  Added bonus, I love the colours! Many thanks to Cycle world in Romsey for selling to me at a discounted price after establishing what the bike was for.

Now the bike crisis was adverted it was time to start cycling. I. DON’T. HAVE. TIME. Like seriously how can I fit in cycling on top of essays, exams, placement, working, living…yes living. Wow I really do need to block time out in my diary. I have plenty of time though. 6 months is plenty of time!

Hang on, I think I have forgot something? I’m sure there is something I really need to work hard on, just to keep me safe and well. Just to make sure I can actually mange this bike ride. Yep, I’ve got it. That will be the type 1 diabetes. It was time to start learning about managing my diabetes with exercise. The impact exercise has on me (totally unfit). The impact it has on my blood sugars. The impact my blood sugars will have on me. What food I need to eat and drink. Foods to avoid/minimise.

Oh man, did someone say this will be easy!?!

 

Frio visits Croatia

The lovely team at Frio sent me some products to try which I took along with me for my little adventure to Omis, Croatia. A stunning fishing village. Yet we had not planned for the cold and wet weather! That certainly did not stop us from having the most amazing time. I love these ladies so much and look forward to our next adventure, maybe with a new addition too 😉

I had used a frio wallet when I travelled to Cyprus and loved it so much I knew I would be making further purchases. So was super excited to be able to try the new products. Unfortunately I was unable to put these to full use due to the lack of sunshine. However our last day the sun was shining and we even managed to watch the dolphins elegantly jumping out of the water making their way past our amazed faces. The gorgeous Frio tagged along to the beach with us.

So what is Frio? Frio products help to keep medications cool. For me this is a must have for my insulin. I am hoping I can use these when summer arrives. Oh wait, it is British summer time now right? Maybe these little beauties will get full use next summer? Unless anyone wants to take me on holiday, just somewhere hot and luxurious….I will await replies (or even set up a separate email? I’m sure I will be inundated with offers…….)

O.K. Getting back to Frio.

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Aztec mini

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This product is light and compact, the perfect companion, cool and trendy, for my insulin pump to hideaway and sunbathe next to me. My insulin pump fits nicely in this small zipped purse. I am hoping that when I do manage to hay a lay in the sunshine. It was also handy to pop my inhaler in here too (not with the insulin pump)

Medications and cosmetics cool wrap

I literally love polka dots. Spots & stripes, my fave! So instantly fell in love with this wrap. The FRIO Wrap was able to hold spare pens, test strips and other essentials. Perfect travelling companion. Looking forward to be able to use this when I head to my next sunny destination. I also used this to pop some make up products in, lip gloss of course!

The wrap has 12 sections in total, 6 on each side, of varying sizes to be able to hold different items. An absolute must have!

Medication purse

 

Did I mention I love polka dots? This will be ideal to take out during the day with insulin products, or other items that need to be kept cool. Not only is it ideal for medication, my phone, bank cards and make up fitted nicely in here.

 

Final verdict: WINNER!

Frio website http://friouk.com/

Twitter – @FrioUKLtd

Disclaimer – I was not asked to write a blog about these products. I was provided them to review and offer feedback. All views of these products are my own views.

 

L2P training 12/06/16

London to Paris (L2P) training

NB. The information regarding dietary intake and insulin ratio’s are personalised for me and should not be followed by others.  All advice and changes to insulin and dietary intake must be provided by your health care professional.

27.5mile ride planned for 1.30pm.  A polite request to Mr weather man …..please hold the rain until we get home…PLEASE

Aim – to maintain a nice steady blood glucose level. Yeah right, when does that ever happen! Oh, hang on…it once did…back when my pancreas was fully operational.        OK so the real aim is to prevent or even reduce the number of hypos during and post bike ride.

Plan

exercise bg.png

My actual plan

12pm – 2xtoast, 2xeggs = 38g

Normal bolus (forgot to reduce!)

Temporary basal rate (TBR) 70%, (30% reduction of normal basal insulin), for 5hours. This should cover the ride and ….ops, will need to extend to cover 2hours post cycle. Will do this once I’m home.

Things to take. 2 water bottles, 1x500ml water. 1x500ml isotonic sports drink (1/3rd of the drink every hour will help….but I don’t have any more space for another bottle!). 250ml juice carton. 130g bag jelly babies. 1 banana. Think I may get myself a little (large!) basket to carry everything I need!

Due to repeated hypos this week, 3-5 a day, I think it may be wise to take glucagon injection JUST IN CASE. Being in the new forest It could take a while to get help if needed, or even have any phone reception, and as much as I love Donkeys I’m not sure they will be able to help me!

Must remember to have extra carbs before ride!

Must remember to eat carbs after ride. 50g carbs. 20g protein.

Must remember a snack pre bed ….do I bolus for this? I’m sure I do. I think I do. Oh sod it I will and just hope for the best.

Must remember to reduce basal overnight. Previous ride, same route, caused multiple night hypos which resulted in lack of sleep and a very tired and cranky Kelly.

Breakfast following day – reduce bolus by 30%. Cancel TBR

End result………

To be continued………